I remember the first time I received my son’s diagnosis. I really didn’t know how to respond. On the one hand, I was relieved and on the other, I was sad. I was tossed between being thankful and crying my eyes out. Of course I did neither. I spent the entire time trying to absorb everything I was told.
The diagnosis definitely validated my concerns. It was good to know my worries about my son’s development were legitimate. He was my first child, so I wasn’t sure if his delays was normal. But getting the diagnosis brought clarity and a huge sense of relief. And that was great, but wrapped in the relief was also sadness.
Sadness because the diagnosis also validated the fact my son had a disability. There was no denying it now. It would be written over all his files and medical records. Truth to told I never thought I would have a son with a disability. This was certainly not something I had hoped for him.
As if trying to sort through all the emotions isn’t bad enough, there is also the logistical and practical aspect of receiving your child’s diagnosis. Things like researching the disability. Looking up treatment options. Setting up therapy appointments, contacting specialists for further testing, etc. Basically, figuring out how to live with the diagnosis. And you can’t really put this on hold while you work through your emotions.
Having lived through it, I know very well what a stressful time this can be. So I want to share some of the things I’ve learned that helped me. I hope it will help you on your journey as well.
5 facts about your child’s diagnosis
1. The diagnosis does not change your child. He/she is the same child you loved before the diagnosis. You can read more about this here.
2. The diagnosis is a tool for understanding the symptoms and behaviors of your child. It is not a label that defines your child. You can read more about this here.
3. A diagnosis doesn’t mean imperfection or inferiority. Having a disability does NOT mean your child will be inferior. Or the quality of his life will be less than everybody else’s. You can read more about this here.
4. It is okay to be sad about your child’s diagnosis. This was not the future you hoped for your child or yourself. You’ve experienced a loss and it is only natural to be sad.
5. You are more than enough to be the perfect parent to your child. God has entrusted this child to your care. As a result, He will equip you with everything you need to be the best parent you can be. You can read more about this here.