*This is part five of Harlie’s story. The rest of her story can be found here: part one, part two, part three, and part four.   As mentioned in the previous post, Harlie not only dealt with frustration...

*This is part four of Harlie’s story. The rest of her story can be found here: part one, part two and part three.   In the previous post, Harlie talked about not being defined by her condition....

*This is part three of Harlie’s story. The rest of her story can be found here: part one and part two.  For Harlie, difference meant determination. She wasn’t going to let EB define who she was....

*The first part of Harlie’s story can be found here Harlie always felt she was different. When she was little she didn’t exactly have a name for it. But she felt it from the soles of her feet to...

There are some disabilities that are easily seen and others that aren’t so obvious. Often it’s referred to as an invisible disability. Although, I’ve recently learned non-apparent is the better term...

Mary Ann has come a long way since getting her son’s diagnosis. In that time, she’s learned a lot.   She’s discovered the courage to advocate and speak up when she has concerns. She’s not ashamed to...

One lesson God has been teaching Mary Ann is managing both joy and grief. Because when she looks back on her life she realizes her most joyous moments also contained sadness.   At the time she didn’t...